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Article Code of Conduct for Brain Banking online

15/01/2015
Article Code of Conduct for Brain Banking online

The article BrainNet Europe’s Code of Conduct for brain banking is published in the Journal of Neural Transmission (JNT), issue January 2015. A special issue of JNT to honour the late Professor Hans Kretzschmar, who was the dedicated leader of the BNE Consortium and advised and supported us throughout the development and evolution of the Code of Conduct between 2006 until the ratification by all BNE members in 2008.

Abstract of the article

Research utilizing human tissue and its removal at post-mortem has given rise to many controversies in the media and posed many dilemmas in the fields of law and ethics. The law often lacks clear instructions and unambiguous guidelines. The absence of a harmonized international legislation with regard to post-mortem medical procedures and donation of tissue and organs contributes to the complexity of the issue. Therefore, within the BrainNet Europe (BNE) consortium, a consortium of 19 European brain banks, we drafted an ethical Code of Conduct for brain banking that covers basic legal rules and bioethical principles involved in brain banking. Sources include laws, regulations and guidelines (Declarations, Conventions, Recommendations, Guidelines and Directives) issued by international key organizations, such as the Council of Europe, European Commission, World Medical Association and World Health Organization. The Code of Conduct addresses fundamental topics as the rights of the persons donating their tissue, the obligations of the brain bank with regard to respect and observance of such rights, informed consent, confidentiality, protection of personal data, collections of human biological material and their management, and transparency and accountability within the organization of a brain bank. The Code of Conduct for brain banking is being adopted by the BNE network prior to being enshrined in official legislation for brain banking in Europe and beyond.

Structure of the Code of Conduct

The Code of Conduct consists of IV Chapters:

Click here for an overview of the international legislation and guidelines on bioethics used in preparation of the Code of Conduct.

Code of Conduct

The Code of Conduct can be downloaded here: